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Langerhans Cell Sarcoma

Langerhans Cell Sarcoma

Links

Complimentary Treatments

Traditional Chinese Medicine

www.traditionalchinesemedicine.com.au


Traditional Chinese Medicine Dr Qi Xin Chen, Sydney, Australia Daniel has been seeing Dr Chen since diagnosis . He works alongside Western medicine and specializes in Cancer. His many testimonials and the full waiting room every day is proof of his credibility and success with treating many conditions. His philosophy is to treat the body so it fights the Cancer by building up the T- Cells and the immune system. Most western doctors are now accepting TCM as a very good complimentary healing process. Its been around for thousands of years in China and is simple and logical in its methods.

Posted February 4, 2011 at 2:58 AM

Cases (Past and Present) may contain medical terminology- read with care!

Deryn-13 years old- UK

www.langerhanscellsarcoma.co.uk/


Deryn is currently being treated for LCS . He also has Leukemia. This is their blog


Posted February 1, 2013 at 7:12 PM

Sydney- 7 yr old- USA

www.caringbridge.org/visit/sydneywaldrop


Sydney was diagnosed in 2012 and is currently receiving treatment


Posted February 1, 2013 at 7:14 PM

Daniel-Diagnosed 2009- 18 yr old

www.langerhanscellsarcoma.com


This is our story


Posted February 1, 2013 at 7:18 PM

Germany- 81 yr old male

www.springerlink.com/content/727073t145712166/


A case in Germany. An 81 year old male. The sarcoma was in his lungs. First case in Germany?


Posted February 4, 2011 at 3:17 AM

Korea- 34 yr old Male + 18 other cases

www.langerhanscellsarcoma.webs.com/


Langerhans Cell sarcoma arising from Hisiocytosis. 34 year old male - Korea- this article also mentions 18 other cases that they found whilst researching. I have not found any links yet for most of those cases.


Posted February 4, 2011 at 3:38 AM

USA- 33 year old Male- Hip- Lymph nodes

www.ncbi.nlm.nih.gov/pubmed?term=langerhans%20cell%20sarcoma%20ferringer


A case of a 33 year old male - on his hip- lymph node involvement- USA


Posted February 4, 2011 at 3:42 AM

USA- Male with LCS and Lymphoma

www.wdfb.com/dond.htm


Don Drake - Kentucky, USA . Don had Langerhans Cell Sarcoma and also lymphoma and sadly passed away in 2009.


Posted February 6, 2011 at 12:59 AM

Langerhans Cell Sarcoma

www.ncbi.nlm.nih.gov/pubmed/20554413


62 yr old Male - Langerhans Cell Sarcoma In lymph node- JAPAN


Posted February 6, 2011 at 1:05 AM

Langerhans Cell Sarcoma

www.ncbi.nlm.nih.gov/pubmed/1571264


49 yr old woman - JAPAN


Posted February 6, 2011 at 1:17 AM

Langerhans Cell Sarcoma

onlinelibrary.wiley.com/doi/10.1111/j.1600-0560.2007.00907.x/abstract


88 yr old male - on scalp- Baltimore USA


Posted February 6, 2011 at 1:44 AM

Langerhans Cell Sarcoma

www.ncbi.nlm.nih.gov/pubmed?term=eshap%20langerhans


53 yr old woman- JAPAN


Posted February 6, 2011 at 1:49 AM

Japan- 67 yr old woman - in remission

www.ncbi.nlm.nih.gov/pubmed/232576727


A 67-year-old woman presented with a right inguinal mass in May 2006. CT scan showed lymph node involvement from the right inguinal to the common iliac and (18)F-FDG-PET revealed uptake in those areas. Biopsy results indicated Langerhans cell sarcoma (LCS). Interestingly, tumor cells expressed a high MIB1 index of 30%. We administered doxorubicin, ifosfamide, and mesna (AIM) chemotherapy, which were reported to effectively treat soft tissue sarcoma. After 5 courses of AIM therapy and involved-field radiation for residual diseases and a relapsed lesion on her right cervical node, she has remained in complete remission for more than 4 years. LCS is an intractable malignant disease and the optimal therapeutic strategy remains unclear. The AIM regimen combined with radiation therapy may be an effective treatment option for this disease.


Posted February 4, 2011 at 3:13 AM

link is broken- sorry

www.ijs.sagepub.com/cgi/content/absract/17/4/347


A case in China- 74 yr old with gallbladder and lymph node involvement.


Posted February 4, 2011 at 3:07 AM

 86 yr old Male- Ottowa

www.diagnosticpathology.org/content/7/1/128


first case of Langerhans cell sarcoma with an aberrant cytoplasmic CD3 expression


Posted June 6, 2013 at 9:24 AM

4 cases

www.ncbi.nlm.nih.gov/pubmed/15914364


The patients shared some clinical findings, such as multiorgan involvement of lymph nodes, skin, lung, bone marrow, and spleen....thus a poor prognosis


Posted June 6, 2013 at 9:32 AM

63 Yr old - Spain

www.sciencedirect.com/science/article/pii/S1507136710000568


with multivorgan involvement and also immunosuppression-


Posted June 6, 2013 at 9:45 AM

Sarcoma Foundations Worldwide

list not complete...will add more as I can- Too many to list on here. Just google....Sarcoma Foundations then your country to search for local organisations and information.

SFA- America

www.curesarcoma.org/


Posted February 9, 2011 at 2:54 AM

Norwest- America

www.nwsarcoma.org/


Posted February 9, 2011 at 2:56 AM

SARCOMA ALLIANCE

sarcomaalliance.org/


Posted February 1, 2013 at 7:24 PM

Hannahs Chance

www.hannahschancefoundation.org.au/our-story


Posted February 9, 2011 at 3:05 AM

Rainbows for Kate- Australia'

www.rainbowsforkate.com.au

Posted February 13, 2011 at 1:36 AM

Liddy Shriver Sarcoma Initiative


sarcomahelp.org/index.html


Posted February 13, 2011 at 1:45 AM

 Rein in Sarcoma


www.reininsarcoma.org/


Posted February 1, 2013 at 7:37 PM​

Knock Out Sarcoma


www.knockoutsarcoma.org/

Posted February 1, 2013 at 7:39 PM

www.cjrsfoundation.org/


Posted February 1, 2013 at 7:40 PM

www.brettarminfoundation.org/


Posted February 1, 2013 at 7:41 PM

paulatakacsfoundation.org/


Posted February 1, 2013 at 7:41 PM

www.kicksarcoma.org.au/KickSarcoma/AboutUs.aspx


Posted February 1, 2013 at 7:42 PM​

fightsarcoma.org/

Posted February 1, 2013 at 7:43 PM

 Erik Hausoul Sarcoma Foundation

erikhausoulsarcomafoundation.webs.com/


Erik's family and our family have become good friends. Erik passed away in 2008. He had Osteosarcoma.


Posted February 1, 2013 at 7:46 PM

www.sarcomacancer.ca/


Posted February 1, 2013 at 7:48 PM​

Sarcoma Hospitals Worldwide

This list is not complete. I will add more as I find them...once I go through all my emails and papers.

SYDNEY, AUSTRALIA Daniel's Team of Doctors

www.sydneycancer.com.au

Daniel is being treated at RPA, Sydney. The sarcoma team here is wonderful. Professor Tattersall is a Medical Oncologist ( there is nothing he does not know about treating cancer) Daniel feels safe in his hands. Dr Paul Stalley is Daniel's orthopedic surgeon ( one of the best!) Keith Cox- The conductor of the Chemotherapy ward( made Daniel's treatment go smoothly and made him feel comfortable). If you are in NSW- this is the place to go.

Posted February 9, 2011 at 2:18 AM

LIST OF HOSPITALS on SFA site

www.curesarcoma.org/index.php/patient_resources/sarcoma_centers


The Sarcoma Foundation of America has a list of Hospitals on their site.

Posted February 9, 2011 at 2:27 AM

List of Hospitals on Sarcoma Alliance site

sarcomaalliance.org/sarcoma-centers/


another good list on the Sarcoma Alliance site

Posted February 9, 2011 at 2:29 AM

UK- Royal Marsden Hospital


www.royalmarsden.nhs.uk/consultants-teams-wards/clinical-units/sarcoma-unit

Posted February 9, 2011 at 2:32 AM

AUSTRALIA


www.australiansarcomagroup.org/find-specialist.html


A list of centres on the ASSG site


Posted February 9, 2011 at 2:37 AM

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